Our lives would never be the same the day we received that call nineteen years ago…
Your son has Duchenne Muscular Dystrophy.
The more we learned about the disease, the more difficult it was to accept.
No cure.
No way to stop it.
No hope.
Nineteen years after that initial diagnosis, I am happy to say that there is hope. Tremendous strides have been made in research, awareness, and improving standards of care and treatments.
An entire generation of boys, including our son Grayson, are benefiting from these advancements. But it’s not enough.
There still is no cure, and we must continue the fight until one is found. The lives of Grayson of other boys affected by this disease depend on it.
Thank you for visiting our site. Together we can help overcome Duchenne Muscular Dystrophy, and provide Grayson and other boys another day.